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ERA-NET rare disease research implementing IRDiRC objectives (E-Rare-3)
Start date: Dec 1, 2014, End date: Nov 30, 2019,
Rare diseases (RD) are diseases that affect not more than 5 per 10 000 persons (according to the EU definition). 7000 distinct rare diseases exist, affecting between 6% and 8% of the population (about 30 million EU citizens). The lack of specific health policies for rare diseases and the scarcity of the expertise, translate into delayed diagnosis, few medicinal products and difficult access to car ...
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