3 European Projects Found
Searched on 125080 European Projects
FINISHED
Platform for sharing best practices for management of rare diseases (RARE-BESTPRACTICES)
Start date: Jan 1, 2013, End date: Dec 31, 2016,
RARE-Bestpractices will develop a sustainable networking platform, supporting the collection of standardized and validated data and efficient exchange of knowledge and reliable information on rare diseases (RD).RD are characterized by low prevalence (EU – 5:10000 persons). There are more than 5000, overall affecting about 30 million citizens of all ages in the EU. RD are often life-threatening and ...
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16
Partners Participants
FINISHED
Developing and Evaluating Communication strategies to support Informed Decisions and practice based on Evidence (DECIDE)
Start date: Jan 1, 2011, End date: Dec 31, 2015,
Objective: To improve the dissemination of evidence-based recommendations by building on the work of the GRADE Working Group to develop and evaluate methods that address the targeted dissemination of guidelines.Background: Healthcare decision makers face challenges in understanding guidelines, including the quality of the evidence upon which recommendations are made, which often is not clear. Gui ...
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13
Partners Participants
FINISHED
The COMET (Core Outcome Measures in Effectiveness Trials) Initiative (COMET)
Start date: Oct 1, 2012, End date: Dec 31, 2014,
"Clinical trialists often struggle when trying to choose the outcomes to measure which would be of most use to the patients, practitioners and policy makers who will use their research to help them make decisions. These difficulties are passed on to those producing and reading systematic reviews, many of whom have experienced the frustration of finding that the original researchers either did not ...
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