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Development of a Training Program for Improving th..
Development of a Training Program for Improving the Wellbeing of Persons with Cerebral Palsy Through Inclusive Feeding and Physical Activity
Start date: Sep 1, 2016,
End date: Aug 31, 2018
PROJECT
FINISHED
Cerebral Palsy (CP) is a motor disorder accompanied by sensory, communication, behavioral, cognitive and perceptual disturbances, affecting movement and posture. 2 to 2,5 per thousand births in Europe has CP (1 per 500 persons = 1.000.000). CP cannot be cured, but persons can live a full life with proper care and supports, improving movements, intellectual development, level of communication and social relationships, improving their Quality of Life (QoL) according to the Convention on the Rights of Persons with DisabilitiesFeeding and physical activity are closely linked the QoL of persons with CP (PCP), especially with their physical and emotional wellbeingHowever, inclusive feeding and physical activity are not fully implemented due to a lack of; • Awareness and knowledge of parents and professionals about the effectiveness of inclusive feeding techniques from the earliest stages of life• Feeding ability of many adults with CP who have not been adequately supported in its childhood. They are not sufficiently aware and trained on the possibilities for accessing to a healthy and satisfying feeding and accessible tools at their disposal• Awareness and understanding of the impact on the emotional well-being of feeding aggressive techniques usually employed and the importance of food as an element of pleasure and exercise of rights• Initiative and knowledge of PCP and families regarding their participation in inclusive physical activities, alternatives and opportunities CP-WELLBEING is launched with the main objective of increasing the competences (attitudes, skills, knowledge) of Persons with Cerebral Palsy (CP), families and professionals about how to implement inclusive feeding and physical activity with a global Wellbeing and QoL approach, through an innovative training program.The project has the next specific objectives:• To raise awareness and motivate the full collective about the importance of inclusive feeding and phys• ical activity as a tool for improving QoL of PCP.• To transfer knowledge, tools and guidelines to parents of children with CP and professionals to enable inclusive feeding and integrative physical activity from the earliest stages of life• To transfer knowledge, tools and guidelines for adults with CP, families and professionals, regarding inclusive feeding and physical activityNext partners from 6 countries will participate:• 4 entities working in the field of supporting persons with Cerebral Palsy (AVAPACE, FAPPC, HURT, IL CERCHIO), involving a big collective of persons, families and professionals. • 1 University & Clinic specialized in Nutrition and Healthy Lifesytles, with experience in developing training actions in this field, including actions addressed to persons with special needs• 1 Technological Centre specialized in development of ICT solutions adapted to collectives with special needsThe next results will be obtained;• Co-Created Methodological Guide will be developed, with the direct participation of End Users, with the main objective of determining the key contents, methodologies and tools to be developed• Training Materials addressed to persons with Cerebral Palsy, families and professionals for facilitating the implementation 4of inclusive feeding and integrative and adapted physical activity.• Designed Experiential Training Activities addressed to persons with Cerebral Palsy, families and professionals for facilitating the implementation of inclusive feeding and integrative and adapted physical activity.• Development of an e-Training Platform, including awareness, training contents and tailored and adapted ICT-Games solutions for supporting the implementation of Training Materials and Designed Experiential Training Activities.• Creation of 4 CP-WELLBEING UNITS in all the CP-Associations of the Consortium in order to ensure the sustainable exploitation of the project after the project lifetime.• Development of Dissemination Actions addressed to the European collective related to persons with Cerebral Palsy.VALIDATION ACTIONS will be organized on each country, based on the practical implementation of Training Materials, Designed Experiential Activities and e-Training Platform, involving about 40 persons with Cerebral Palsy and families and 5 caregivers. Evaluation and analysis will be done. Project Activities will be completed with Management and Implementation actions IMPACT during the project lifetime:CP-WELLBEING will benefit a number of persons during the project lifetime:• 160 persons with Cerebral Palsy and their families will be trained (40 in Spain, Italy, Portugal and Croatia), through their participation in the validation actions • 20 professionals (5 in in Spain, Italy, Portugal and Croatia) will be trained, through their participation in the validation actions • 1500 persons with Cerebral Palsy, families and professionals (300 in Spain, Italy, Portugal, Croatia and Germany), will be aware, through the dissemination actions to